What is Community and Patient Partnered RESEARCH Network (CPPRN)?
The Community and Patient Partnered Research Network (CPPRN) is a new project in Los Angeles County and New Orleans that seeks to improve behavioral health services for under-resourced communities. Our CPPRN is a part of PCORnet, an innovative initiative of the Patient-Centered Outcomes Research Institute (PCORI). PCORnet will transform clinical research by engaging patients, care providers and health systems in partnerships that leverage health data to advance medical knowledge and improve health care. PCORnet is a national health data network will allow us to explore the questions about conditions, care and outcomes that matter most to patients and their families.
Our CPPRN is driven by equal partnerships between patients, community members, and researchers to create a system for conducting behavioral health research. All of our research is based on the priorities of communities, patients, and caregivers. We will use community-partnered participatory research (CPPR) to make sure that patients and community stakeholders co-lead research that is important to communities and helps overcome distrust of research.
One of our previous projects, Community Partners In Care (CPIC) also used CPPR. We found that involving many types of community groups in planning efforts to treat depression, and then training health care providers and community agencies in how to address depression was successful. Brining these groups together provided a more complete support system and helped depressed people make improvements in health and social outcomes.
Based on our previous success, we will use this evidence-based CPPR approach in hopes of improving quality of life for patients and their loved ones, and addressing other social issues such as homelessness and hospitalizations.
What is the goal of CPPRN?
The goal of CPPRN is to address persistent racial/ethnic disparities (primarily involving African Americans and Latinos) among adults (18 years or older) and adolescents (13–17 years) at risk for behavioral health conditions. CPPRN aims to accomplish this goal by:
Developing policies with stakeholders via the CPPR approach and community relationships developed through longstanding community relationships.
Create a reproducible approach to participatory research infrastructure development involving patients, caregivers, clinicians, and community stakeholders.
Develop research and data infrastructure using a partnered working group process with collaborative decision making.
What are the CPPRN Principles?
Power and knowledge sharing
Co-leadership by community members, patients, and researchers
Building skills and knowledge among all participants
Co-ownership of all products including data